Hair thinning/loss from Hormone Therapy drug Letrozole
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5 posts since
2 Nov 2016
I have been on Letrozole for nearly a month and my hair is changing and thinning badly, which I find distressing. The worst thing is that I could be on this drug for 5-10 yrs . Was trying to mentally prepare for the chemotherapy and the side effects and thinking , look on bright side , after the chemotherapy my hair will grow back.
Has anybody got experience of the side effect of this drug and advice.
9920 posts since
25 May 2012
Hi Maria,
I was put on the hormone drug Zoladex for my prostate cancer and had more side effects from this than I ever did from the radiotherapy. Hot flushes being the most common. I used to have a contest with my wife and I was way in front both for the amount and for the severity. I also suffered mood swings where if I heard bad or even good news, I would end up with tears running down my face and I had no control over it which I found very embarassing. I also put on weight which I have not managed to lose even though I finnised treatment about four years ago.
So I do understand what your going through. Wishing you all the best, Brian.
1 posts since
22 Nov 2016
Hi, Marie, I’ve been on letrozole for 4 years and my hair did start to thin at the beginning but after something like 6 months it started to grow back in and my hair is back to normal. stick with it as I have found any side effects come and go. Good luck and keep your chin up xx
2 posts since
8 May 2019
Hi Trish, that sounds very encouraging that your hair loss seemed to settle down. I have been on Letrozole for 9 months and my hair is noticeably thinning. This is a very distressing symptom for me and I would welcome hearing from anyone else regarding their experience on this drug.
5188 posts since
15 Jul 2010
Hi All,
I was on Tamoxifen for 1 year and then on Letrozole for 6 years after that. My hair did get thinner, but it was pretty thick to start with.
I stopped taking Letrozole in July 2017, but have recently found Alpecin Double Effect Caffeine Shampoo. It is early days still, but it does seem to be helping with the hair loss.
Kind regards,
Jolamine xx
1 posts since
18 May 2019
Hi Trish and Langley
I’ve been on Letrozole for 2 months and my hair is thinning and breaking off which I find worrying.
I hope it settles down but I’ll have a chat with my nurse.
I may give that shampoo a try.
5188 posts since
15 Jul 2010
Hi Ajayy,
I hope that it does settle for you. You’ve nothing to lose in trying the shampoo.
Kind regards,
Jolamine xx
2448 posts since
16 Aug 2017
Hi just done a search on this nd found this thread. I’ve been on letrozole for what will b 2 yrs in September.
I have always had fine hair but a lot of it but without question mine is a lot thinner. It kinda looks ok but if I lift it up in sections you can see how thin it is. I worry that it will continue… I’m on letrozole for 10 yrs. it kinda sucks don’t it x
5188 posts since
15 Jul 2010
Hi Sandra,
I took Tamoxifen for 1 year and Letrozole for 6 years. My hair got thinner but is still ok.
It still seems a small price to pay to still be cancer free after 10 years.
Kind Regards,
Jolamine xx
2448 posts since
16 Aug 2017
Hi jolamine 
yes tottaly agree better than the alternative but doesn’t stop me not being happy about it
im going with not one of the most common side effects or more would perhaps have posted on this thread? ( oh oh now I’m feeling victimised 
)
i am so hoping mine will slow to a standstill cos definitely thining and texture is changing too. I’ve tried different shampoos… looks a bit less flat but more because they seem to be drying it out.
I guess need to keep trying different ones till I find what best works but 1 bottle lasts a while and some of them are expensive.
Going with the reality is they will not halt the hair loss just help the texture otherwise there would be no bald men walking around
5188 posts since
15 Jul 2010
Hi Sandra,
Have you tried Alpecin shampoo? It’s expensive, but I found it helpful for the texture of my hair. It claims to grow the hair quicker, but I have not noticed this.
Kind Regards,
Jolamine xx
11 posts since
17 Nov 2019
Hi All,
I have been reading about the hair thinning during post cancer treatment, I am on Anastrozole and have noticed my hair has thinned dramatically on the top of my head. I have been on Anastrozole for about a year. I have been to the GP but they are not that helpful it is a kind of shrug the shoulders try Mixodil but you will have to keep using it and it is not available on the NHS. After the loss from chemo I was so happy to see the hair no one told me that it is just short lived.
Does anyone have any tips or is it worth seeing a Tricologist.
Thanks for reading this any offerings will be greatfully received.
5188 posts since
15 Jul 2010
Hi Jan,
Welcome to the forum.
I had 1 year on Tamoxifen, before 6 on Letrozole. My hair did thin, but I tried Alpocin Caffeine shampoo and, I feel that this boosted the growth again.
Please let us know how you get on. We are always here for you.
Kind regards,
Jolamine xx
11 posts since
17 Nov 2019
Hi,
Thanks for getting back to me, I am told the hair is just very thin. I don’t know if this is still my hair trying to grow back after chemo (14months since the last one) or it is the affects of the anastrozole. I was never told that thinning hair is a side effect of the hormone treatment but there again it was on the leaflet. I use Simple products as advised by the Chemo nurse but I will give Alpocin a try. {Thanks}
I have just found a website cancerhaircare.co.uk it is very good the lady is a hairdresser who set up the site to try and help . [This may be of use to anyone else picking up from this conversation]
I have bought a hair powder [make-up for hair] in Superdrug it does help making the scalp less obvious.
Like everyone else after what we have been through you hope to put it behind you. Oh well I guess it all makes you a stronger person.
Thanks again for replying it does make a difference.
Wishing you all the very best Jan xx
4 posts since
18 Nov 2019
Hello
I am new to the forum and stopped taking letrozole after 5 years in July this year and have seen little, if any, improvement in my hair since stopping. I can sympathise with everyone on here as I have tried various shampoos and the volumising ones just make my hair very dry and brittle. I have always had fine wispy hair and the treatment has had a detrimental effect on my confidence over the years. I had extensions for a few months but found them expensive and high maintenance although they did give my confidence a boost. Looking for some feedback from others in a similar position who have recently come off this treatment…….wishing you all the best x
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