borderline cell changes and HPV positive: freaking out

by | Aug 4, 2021 | Uncategorized | 0 comments

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borderline cell changes and HPV positive: freaking out

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3 posts since

16 Mar 2020

Dear all, 

I am 26 and a half and I have done my PAP test again after several years (I don’t even remember how many years ago I did the last one). My results came back and it was a shock: HPV positive,  borderline cell changes and a referall for a colposcopy. I am very very anxious because I have read about girls that had borderline changes identified with the smear teast but then they found them to have cancer at the colposcopy appointment. I find it very difficult to think about anything else, it’s a nightmare.   I am here looking for reassurance and I hope you can help me going through the waiting… 

Thank you a lot!!!!  

1 posts since

16 Mar 2020

Hi lovely!

So I’ve just this hour got back from my colposcopy.. I found your post researching what happens after 

My smear test was High risk HPV and dyskaryosis (low cell change) 

At the colposcopy clinic you get to see your cervix on the screen which was quite fascinating. I have a raw area and a harder patch.. they done a biopsy and I have to wait for the results but on talking to the doctor.she said that it doesn’t just turn into cancer .. th is is just the very beginning stages. The biopsy well tell more if it’s just surface cell changes or further in but even then they can do two procedures… a local injection and laser off the bad cells or if it’s further in a loop procedure done under General and they take off a little.more of the cervix.

I hope that kinda helps x

4 posts since

19 Mar 2020

I’m the exact same age as you and had the exact same smear results too. First in 2017 and again this January and both times the colposcopies revealed nothing when vinegar solution was applied so I just have to have yearly smears for a while. Just wanted to reassure you that those results dont necessarily mean anything is really wrong. 

Hope your appointment goes well!

3 posts since

16 Mar 2020

Hi! 

Thank you very much for your reply! It helps a LOT.

Really? I am so worried that they might find cancer but then I try to remain rational… unfortunately there is no way to know before the appointment and it will be only in late April. I hope at least, given all this coronavirus situation….

3 posts since

16 Mar 2020

Thank you Everdream! 

It does not seem so bad from what you say…When will you have your results back?

Hope everything goes well! 

XXX

2 posts since

4 Feb 2021

Hi

i have had the same results through the post a few days ago from my smear in early December and I too can’t think of anything else. I’m worried sick I keep googling things and keep crying at the prospect of having cancer and not being able to watch my little girl grow up and leaving her without her mummy! I hope you are ok and got good results! With COVID it’s saying my appointment for xoposcopy should arrive within 8 weeks and I’m freaking out at having to worry about this for so long!  I had to reply because it’s like everyone keeps saying you will be fine done worry it’s common and I feel like the high risk Hpv is making it so much more frightening for me

xx

5 posts since

4 Feb 2021

You’re me! It’s spooky. Except with a young son. Same thing, early Dec had a smear, just got letter today to say HPV positive and “changes” I called my dr who told me they were “borderline”… which is better I guess? But I don’t know and don’t want to Google TOO much. It also said 8 weeks for colposcopy on my letter, which seems forever – BUT my doctor said it hadn’t been put through as an emergency in that case – so I guess that’s a good thing for us? I hope anyway. Xx

2 posts since

4 Feb 2021

That’s very much spooky! Thank you for replying to me because I felt very alone in this. I haven’t called my gp but I’m going to tomorrow morning now to see if I can get any further information. Yeah I guess that if they don’t see it as emergency it can only be a good thing for us  At least we are not alone in this. Can’t believe how much we take health for granted until something like this, what a reality check it’s given me !! xx

5 posts since

4 Feb 2021

I had to reply because I felt the same, your wee post made me feel a bit less alone! My GP definitely made me feel a bit better, especially because he said it was “borederline” (I assume thats on the lower end of the scale and not like “borderline bad!” – but now I’m questioning myself!) my letter didn’t say it was borderline, did yours? He sounded very much like “ah you’re fine” which helped, but I’m hoping he’s right! 
call them tomorrow, you might find out a bit more, and they might be able to offer you a bit more advice too! 

definitely, it’s pretty scary Sad Xx

9 posts since

8 Jan 2021

Hi just seen both of your posts. Just wanted to reassure you an try put your mind at rest. I also had a HPV positive  result from my first smear in 2019 followed by annual smears for 2 years beginning of Jan I had a HPV positive and borderline cell changes result. Had my colposcopy this morning and was told everything looks fine so was discharged for smears every 3 years now. Try not to worry or google I done exactly the same and you just think of the worst. Hope you both get your appointments through soon and get the same result. Good luck sending you love x

5 posts since

4 Feb 2021

Hi Alex! Thank you so much for that, that definitely does help, I didn’t realise they would know there and then (as they were doing the colposcopy) that everything was fine. Presumably if not they’d send a sample away or something? So glad all is fine with you! Fingers crossed it’s exactly the same with us ❤️

9 posts since

8 Jan 2021

Hi sorry for the late reply. Yeah so they basically checked with the microscope had a look at the cervix then sprayed an iodine solution onto the cervix (think that should show any cell changes) and at this point they would either see if they were happy with everything or if they wanted to take a biopsy they probably would have at this point. As she was happy with mine there was no need for a biopsy and she just explained that I would be discharged to my GP and would get another smear in 3 years. Hope you are doing well and get your app through soon Happy xx

2 posts since

9 Feb 2021

Did any of you ladies have any symptoms? I have my colposcopy on Friday after being told I have HPV and high grade changes but I’ve been put on the 2 week referral which worries me as clearly they think it’s urgent. My main worry though is the pain in my lower back and cramp/contraction like pain in my pelvis inbetween periods. No blood or discharge or anything. I’m so scared. 

57 posts since

4 Mar 2021

i had my results back today from smear.

hpv and borderline changes. 

i feel ill. ive been crying and shaking all night.

being sent for a colposcopy.

im terried 

2 posts since

5 Mar 2021

Hi everyone. I’ve just found this forum after frantically googling about a “posotive HPV + borderline” letter after my smear. I’m now extra worried as everyone seems to have to wait weeks for an appointement after a letter like this. My letter says I will get a phonecall within 10days. Especially with it being a pandemic, it feels very rushed to me. I’ve known from the age of 18 that I have HPV (I am now 30), I’ve smoked since I was a teenager (obviously this just adds to the chances of having cervical cancer) and I sometimes bleed after sex but not everytime and it’s just a smudge of blood (I’ve only started dating my on/off boyfriend for the past few months and was single for 2 years before then, so I assumed the bleeding after sex was normal as it had been a while since I’d had sex and my current partner is bigger, if you know what I mean, so never thought anything of it). Now I’ve convinced myself I have cervical cancer and I’m dying. I’ve had one smear in the past, years ago. I never received a letter after that one so rung my sexual health clinic who said its nothing to worry about as I would have had a letter if anything had been found but ahe didn’t sound too sure and I never followed it up. So now I’m wondering did they even send the sample of that one to a lab or maybe loose my results. So I’m 30, had HPV for at least 12years, no guarantee that I’ve had an actual smear test result before, showing symptoms and now have a letter in front of me saying they have found borderline changes with posotive HPV and to expect a call within days. It’s only been a few hours since I read my letter and I’m already thinking how am I going to tell my 10yeard old little girl that her Mum is going to die. I sound pathetic, dramatic and silly but I need to write my worries out and tell someone to make myself feel less anxious. I just messaged one of my closest friends who replied saying it will just be a precaution then went on to say how great it was that she just had a good grade for her unni assignment. I was hoping for a little more assurance, haha. I feel better already after reading some of the posts here but slightly alarmed my letter mentions 10 days. Possibly diferent arreas have diferent waiting lists. I would call my local surgery tomorrow for some reassurance and more clarity but trying to get an appointement there is harder than getting to the moon. Especially now with covid. It took me 8 months just to get the smear test as they were constantly fully booked. I even called a private health centre to get one there but was quoted £430 which I couldn’t aford. Sorry for rambling, I just needed to let it out somewhere. X

borderline cell changes and HPV positive: freaking out

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