Kidney removal
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8 posts since
21 Nov 2016
Hi am new to chat ….has anyone else had a kidney removal….I .feel alone
592 posts since
5 Nov 2016
Hello pinkypie & welcome
sorry that u are going to have surgery. Have you got a date?
A friends father had to have a kidney removed & healed amazingly quickly.
I have a mass in my right kidney which they are waiting to see if it has grown. I shall be having scans in january. If it’s grown it might mean surgery
Its awful to feel alone with this horrific disease that is why joined.
take care
9 posts since
22 Nov 2016
8 posts since
21 Nov 2016
9 posts since
22 Nov 2016
Hi again,
From your first posting I did not realise that you had already had your left idney removed. An operation of that size will certainly give you a great deal of discomfort and pain for a good while but it should subside fairly soon. Just keep taking pain killers. If you can go out for a very short walk, that will help loosen the area up. The numbness does lessen but I can still feel areas of numbness caused by the severing of nerves during the op. This is very mild and does not cause me any problem whatsoever. My scar is also about 15 inches long and I had staples inserted to start with. My kidney cancer returned after 3 years but due to excellent ongoing, and very regular monitoring, this was caught at a very early stage, and after two lung operations and the removal of part of a rib, I was up and running again. No chemo needed after the original op or after lung surgery. I cannot over emphasise the importance of being monitored very regularly. This is the key to success. Catch the ****** early! After more operations, and ongoing oral chemo, I am well controlled even though the cancer is now stage 4. I am not interested in prognosis. Today is day of celebration for you. The news could have been a great deal worse. It sounds positive to me. Go and do something you enjoy, may be a meal out, or a cinema trip. Live for the moment and not for the future. Put the C to one side for now, it all looks positive at the moment so celebrate that. I have had cancer for almost 20 years. It started with bladder cancer in 2000! Do keep in touch.
David
13 posts since
2 Oct 2016
Hi Pinkypie
have sent you a response but put it in newly diagnosed-clearly rubbish at this!
However we are rowing alongside you boat hunny ! Have a read it may help, do hope so
Zelda
9 posts since
22 Nov 2016
Hi,
Have seen your reply to Pinkypie in the “newly diagnosed” forum and was wondering where your husband is now and how you are coping. Just thought that you might be interested in my reply to Pinkypie in the “introduce yourself” section of the forum. You may have already read it. Let me know if I can share any of my experiences with you. I am now living a good life 10 years after having my kidney removed. I have secondaries and am stage 4, but well controlled with oral chemo.
David
32 posts since
5 Aug 2015
Hi Pinkypie
Sorry to hear of your diagnosis but welcome to the forlum, i had my left kidney and adrenal gland removed last October by keyhole. I was in hospital about 27 hrs, decided I’d rather be at home and let my super dooper hubby look after me. I’m 62 and was a little shocked that it took me a good 3 months to get back on my feet, very frustrating! I managed to go on our annual hols for a month to Lanzarote last January. Anyway, I thought you might like to hear my good news to spur you on. I have just had my first year scan and hooray! Good news, no recurrence . My tumour was a 7mm, Pt3a, grade 4 intermediate with a 20% risk of recurrence. So far so good! Lanzarote here I come again! Two months this year hehe!
Hope all goes well for you. Keep in touch.
Jeanne x
32 posts since
5 Aug 2015
Hi David
good to read of your progress so many years on and how well you are doing.
How long was it before your secondaries reared their head? Sounds as though you are managing it well though.
good for you Love to hear positive stories.
Jeanne
9 posts since
22 Nov 2016
Hi Jeanne,
Secondaries appeared in the lungs three years after the kidney was removed. They were tiny and caught very early. This was down to the excellent monitoring I was receiving. A maximum gap of 3 months or a minimum of two weeks between reviews.
Happy days, for now.
David
32 posts since
5 Aug 2015
9 posts since
22 Nov 2016
Hi Jeanne,
Well, I obviously do not know the full details of your case but my scans have never been more than 6 months apart, at the best times, and at the moment I am scanned every 12 weeks and bloods every six weeks. However, I am stage four and would expect this level of surveillance. Sometimes the frequency increases depending on results. I also have direct contact, at any time, with my nurse specialist. Your current state may well suggest the style of monitoring that has been set by your Consultant, but personally, and given the experience and benefits I have had from very detailed and regular monitoring, I would not accept the monitoring programme set by your Consultant. Much could happen within the very long time spans between scans. It is essential to catch things as they happen. I have known a number of people who have had massive gaps between monitoring and have suffered as a consequence.
Hope this helps you.
Regards.
David
13 posts since
2 Oct 2016
1 posts since
24 Nov 2016
9 posts since
22 Nov 2016
Hi, did you get a reply from me in respect of your last posting? I am hopeless with technology and think that I may have lost it in the systems somewhere!
Just a few thoughts about David’s good progress since op and lack of info for relatives. Do not want to repeat it all here if you received it.
Regards.
David
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