Lobular grade 2 breast cancer and lymph nodes37 and scared.
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21 posts since
2 Jul 2021
I’ve had my MDT round up today.
85mm in total in multiple lobular sections, estrogen receptive, plus it’s spread to my lymph nodes.
I’ve to have ct scans and bones scans ASAP to see if it’s spread and to where, before mastectomy next Thursday. Then it’ll be radiotherapy and chemotherapy and tamoxifen and god knows what else.
I’m only 37 and cannot believe it’s happening. I have 2 very young children and no idea how this is all going to pan out. To say I’m distraught is an understatement.
I’m looking for buddies on here to share this journey with. I feel like I need to speak to people who know what I’m going through.
No symptoms bar usual aches and pains, until the lump appeared 7 weeks ago. Now my whole world is upside down and I’m scared.
1510 posts since
14 Dec 2018
Hello love,
it really does suck doesn’t it? You will go through every emotion there is. I’m here to say ( although I’m a lot older than you) I’m out the other side ….it went from ” innocent fibroadenoma ” to cancer within a week…I had surgery, chemotherapy, rads, herceptin and hormone inhibitors….phew!
Try and take each treatment as a separate thing to tick off your list….don’t think too far ahead, it will mess your head up more than it already is…
you can and will get through this, just remember one foot in front of the other, I just wish there was a fast forward button for you but please believe me when I say somehow the time will pass and you’ll look back on everything that’s happened to you and wonder how on earth you coped…and cope you will ❤️
14 posts since
9 Nov 2020
Hi I do understand I’m HER2 positive,I’ve had nine scans,mri and ct scans I had 6 months of chemo,then had an op to remove the lump and lymph nodes under my arm.I’ve now been told to have to have radiotherapy then 8 months of the oral chemo,my name is not lucky lol,you just have to keep strong and stay positive x
3 posts since
19 Jun 2021
Hi there,
Ive been where you are just now; the shock, the anger, the confusion, the denial, the realisation and then the anxiety. It really is rubbish!
Im 36, 2 kids, diagnosed Invasive Ductal Breast Cancer. My first operation is on Tuesday, where they will also be doing a sentinel node biopsy (my lymph nodes looked okay on ultasound) but this is needed to make sure. Depending on the outcome will decide my next treatment pathway.
Much like yourself im still at the very beginning of the journey (although diagnosed in May, 2nd biopsy etc have held up operation date).
I have found trying not to look to far forward helps, one step at a time. There are some fantasic forums, like this one, with similar cancer buddies for support. Also Instagram has a great community with lots of great links to bios & podcasts etc.
Try not to google, easier said than done i know, says the google queen right here ♀️! But it really does provoke anxiety. Know that your not alone, and put your faith in your oncology/surgical team.
You got this… We got this
7 posts since
22 Mar 2021
My wife was exactly the same situation as you, at a similar age- 36.
You’ll be fine- the oncologost and the doctors know exactly what theyre doing.
Yes, you’ll have to have chemo, but they give you so many drugs to prevent the side effects, which makes it so much more bearable. My wife even managed to go back to work and fit exercise classes in around her chemo sessions.
The next six months will be tough, but you can get through it. Keep the faith.
1 posts since
1 Aug 2021
Hi,
I’m just behind you in this rather unwanted journey!
I’m 42, have 3 young children and have just been diagnosed with invasive lobular cancer. It’s ER+ & am just waiting to hear HER2 status. They think it’s 19mm on USS but I have an MRI on Tuesday & I know that given the nature of lobular that things could all change. MDT a week on mon & our meeting straight after that to have exact plans confirmed. I really feel all this waiting is the hardest!
xx
21 posts since
2 Jul 2021
I have now had a single Mx and ANC and it wasn’t pleasant but manageable pain so far. Still groggy but arm movement exercise started and movement is tender but not as restricted as I expected. First step on road to health hopefully.
Lobular grade 2 breast cancer and lymph nodes37 and scared.
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