Oesophagus cancer
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4 posts since
22 Dec 2020
Just got back from consultant and been told they can not operate on my oesophagus cancer has it has spread to lymph nodes around body. The consultant wants me to start an 18 week chemo session after Christmas .
Has any one else had this with success?
I had chemo and radiotherapy when they were going to operate and it has still spread.
55 posts since
9 Dec 2020
I am sorry to hear that you are going through this. My husband has just started his 9 week EOX treatment for the same diagnosis, his oesophageal cancer has spread to his lung and chest nodes and is inoperable. He is one week in, and so far doing ok, just tired, bit nauseous but he says he can eat easier already which is fantastic, it is very scary, I wont lie, and we dont know whats ahead, but, you are not alone and am here if you want to message anytime for support. Take care and be sure to take all the tablets as prescribed, and stay safe.
98 posts since
28 Jul 2020
Hi both,
Frenchie , I caught you name from another post/ thread I am active on.
There are a few ‘inoperables’ about on here. One guy Davek, I think- who is about 7 years ‘inoperable’
In terms of symptoms improving, I can vouch for the improvement in swallow after just 1 load of chemo, my husband improved even more after the 2 nd cycle, to the point where he was back on the steak and chips, curry ,With no gagging.
Frenchie- I saw your response to me on the other threat, that your husbands only symptoms were hiccups! that is a tough call to take. Mind you, my husband only started slight gagging all of a sudden at only one meal a day and only with certain foods- we expected the endoscopy to find maybe GORD, maybe an ulcer, but certainly not this.
Anyhow… what can we do other than crack on. Best wishes H
4 posts since
22 Dec 2020
Hi hope your husband gets on ok with his treatment I wonder why his is 9 weeks and mine is 15 weeks.
also I’m having bowel cancer chemo which I find surprising. Mine has spread to Lund and chest the same . I was due to be having the surgery 5th jan till they looked at the pet scan . Good luck
4 posts since
22 Dec 2020
Hi it was good seeing your message on here today hope it’s helped a few of us out .i never new anyone could live for 7 years without the surgery. My consultant woukd not give me any information on times.
i can eat ok after the last chemo and radiotherapy but now they have found it’s spread it’s worried me to bits.
Hope your husband goes on ok and also lives for many years
4 posts since
23 Dec 2020
Hi all,
Sorry to barge in but I have also been wondering why there are different durations of chemotherapeutic treatments. You mentioned Davek who has been living for 7 years with inoperable oesophageal cancer and is considered cured now, but from what I remember he had just had 4 cycles of chemo and that’s it. I remember him mentioning that 4 cycles are probably better than 6 or 8 as it doesn’t completely damage one’s immune system.
My mother had 6 cycles of Cisplatin and Capecitabine then did radiotherapy for 5 weeks, but unfortunately her lung mets came back and she is back on chemo now.
Her oncologist wants to do 8 cycles which is 24 weeks.
Wishing all of you every success and positive outcomes on this difficult journey x
4 posts since
22 Dec 2020
Hi just wondered does anyone know what treatment Davec had ?
I havnt seen the chap on here at all.
Hope your mother is ok on her chemo x
4 posts since
23 Dec 2020
Thank you Steve, mum is doing ok. Hope you are feeling alright too. We are having a scan next week to see if this chemo protocol is working. I remember Davek mentioned somewhere that he was on EOC protocol and decided to have only 4 of those
55 posts since
9 Dec 2020
Just checking in to see how everyone is doing? Hope you and your loved ones are staying safe (and warm!)
My husband has just had his second round of intravenous chemotherapy and also added Trastuzumab as he tested positive for HER2. He is very very tired all the time and has slept pretty much ever since.
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