Secondary breast cancer worries

by | Sep 29, 2020 | Uncategorized | 0 comments

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Secondary breast cancer worries

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108 posts since

10 Jun 2020

Im feeling so low today. Just spoke to my consultant and there are areas around my lungs and stomach that look suspicious and he said that i should be prepared for it to be cancer. But if it is it means its secondary. And its looking like it could be inflammatory breast cancer. Im just gutted and i know theres treatment to prolong my life but im scared. Ive told my mum and sister and they’re upset too. Ive still got to talk to other family members but im really struggling to cope

7 posts since

27 Apr 2020

Hi Amy,

 

it is ok to be scared. You’re going to have some real **** days but you are also going to have some great ones. My mum was recently diagnosed and it’s been a struggle to come to terms with it and to watch her handle all the emotions it brings. I hope everything comes back clear but if it doesn’t, it isn’t the end!! You will still live your life, just a new normal for us. Sounds like you have a supportive family! And only tell people when you feel comfortable. Stay strong Amy. Sending positive vibes x

41 posts since

8 Jul 2020

Hi

sorry to hear your situation 

can I ask your symptoms

 

i have some redness around my areola right breast some redness on breast

sore neck 

sore armpit for last few weeks

 

so worried 

108 posts since

10 Jun 2020

Hi. Thanks for your message. Im sorry to hear about you and your mums situation. It feels so unreal and i would love for these suspicious areas to be nothing but my consultant has told me to be prepared. What upsets me more is that i then won’t be curable. Im really lucky with my fsmily but i hate telling them about this. Its only my brother who ive got to tell now, im dreading it. But like you say, it doesn’t mean the end. Ive got to hope treatment will work well. I really hope everything goes well for you both too

108 posts since

10 Jun 2020

Hi. Yours could be an infection hopefuly. Mine started as a lump a few months ago, i stupidly didn’t get it checked straightaway as i was too scared. About a month ago my breast then became swollen, painful, an inverted nipple with discharge. The thing that made me go in the end is when i found a dent in my breast.

I know its easier said than done, but try not to stress and worry too much. There are loads of things yours could be apart from cancer. Have you spoke to a dr? 

41 posts since

8 Jul 2020

Thank you Amy

just so worrying 

become obsessed with looking at myself in mirror 

feeling for hotness 

going to phone gp next week 

what scans and tests have you had ?

108 posts since

10 Jun 2020

To be honest, every case is different. The best thing you can do is contact your dr and they will tell you what happens next. Good luck and let me know how it goes

32 posts since

17 Jun 2020

Hi Amy. I have only just logged back on to check on you. How are you doing Xx

108 posts since

10 Jun 2020

Hi. Thankfully the suspicious areas turned out to be nothing, so they have said they’re aiming to cure me. Such a relieve! Ive had my 1st round of chemo and its a struggle, but ive got to get through it. But, i had to have a covid test today, im now really scared about that. I get the results tomorrow. How are you? 

32 posts since

17 Jun 2020

I am literally so relived for you. I cannot even begin to imagine what you must be going through! How was chemo, side effects? I hope you have got alot of support and people running around after you. I’m good, I think I mainly suffer with anxiety. Keep in touch, I can’t wait for the day you post your all clear. Stay positive and strong! Am hear anytime. 

108 posts since

10 Jun 2020

Hi. Sorry for the late reply. I was in a bit of a state yesterday waiting for the covid results (im a hypochondriac) and was waiting all day for them! Thankfully all ok. I suffer with anxiety too, so i can make things worse for myself. Ive had a little sickness, tired and headache the 1st few days. But the last few days have been tough! I had a really sore throat and was struggling to get tablets down. And i had terrible pain in my joints. I live with my mum so im lucky shes around for me a lot. Aww, i hope to be able to post im all clear one day too. It feels like my live is on hold. No work and i can’t really go out. But, hopefully chemo will do its job then surgery then radiotherapy

5 posts since

8 Sep 2020

Hi Amy im new to this forum, and came across your story, i am so glad that you didnt have secondaries it must be such a relief, i am in a similar situation at the moment, i have lobuar BC that has spread to my lymph nodes so was told i would need a double masectomy, chemo then Radiotherapy which i wrapped my head around and felt positive, then i had my Bone scan results back and they found 2 suspicous areas on my spine, so now im lef tin limbo waiting on another scan for chemo to then start onthe 18th September.

 

The wating on results leaves me feeling so paranoid and thinking the worse.

 

take care xxx

108 posts since

10 Jun 2020

Hi. Sorry about your situation. Mine is in my lymph nodes too but thankfully no further spread. Its such a worrying time the waiting. Im seeing my consultant 22nd september to see how my tumours are getting on with chemo and im stressing about it already! Im just trying to put it to the back of my mind for now and deal with it when i know. I always think the worst too, its hard not to! Good luck with your results and let me know how it goes

108 posts since

10 Jun 2020

Hi. Hows your chemo going and how did it go with your other scan? 

9 posts since

23 Sep 2020

Hi. 

I am struggling to sleep and I am new on here.

Just reading your posts and wanted to let you know i am also in the same position. I have stage 3 BC but coming towards the end on chemo. Recently started to get backache so had an MRI scan to check. I havent had the results yet but due to have my last chemo tomorrow. 

I desperately want to know if my spine is OK so I can  ring the bell tomorrow. Its the waiting which is the hardest. 

I should be having a mastectomy and then radiotherapy at the end of October but it all depends on the MRI results.

I really hope you are all doing ok. It is so scary.

Jo

Xxx

Secondary breast cancer worries

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