Terminal bile duct cancer
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10 posts since
29 Mar 2017
Hi,
looking for anyone who has experience or knowledge about this cancer, my husband who is 45 has just found out recently after becoming jaundice that he had bile duct cancer and advanced and spread to liver, we met oncologist last week and said it was probably stage 3 but he said it can’t be removed because of where cancer is! So surgery isn’t an option, he then said that it os terminal and prognosis with chemo might give him 6-12 months!!! I can’t get my head round it all!! He is fit and healthy, was never ill apart from jaundice!! Any help would be great i.e. Palliative chemo
thanks amy
2 posts since
29 Mar 2017
Hi , my brother about 7 weeks ago got poorly and very jaundice.. he was given an ultrasound and told he had gallstones.. they did a procedure and also put a stent in .. sdnt him home same day.. he got poorly again dven worse a week of so later.. ended up rushed in ambulance. They did a ct scan that evening.. they said they found a mass on his liver and would show radiology the next day.. i was at work and got a call from my daughter who was at the hospital with my mum .. he was diognosed with Cancer straight off.. no testing.. they could tell .. it is cholangiocarcinoma which started in his bile duct and spread to his liver .. theyve said he has weeks/ months left.. this day was 5 weeks ago yesterday.. cant get my head around it !
148 posts since
25 Mar 2017
10 posts since
29 Mar 2017
Hi
im so sorry, from the more I’m finding out this cancer is a nasty!!! It’s shocked us with how bad the prognosis is, also because they find it so late, because the only time you know is when jaundice comes!! I’m so sorry to hear about your brother and shocked that they sent him home after they put stent in!!! My husband is home now and we have just got to believe in hope and enjoy everything we had 3 kids so have too xxx
10 posts since
29 Mar 2017
Hi,
yes it’s just so awful!! How quick your life can change!! We have 3 kiddies age 12, 10 and 5 that’s what makes this whole thing heartbreaking!! We have spoke to our kids and actually was a weight lifted of our shoulders especially the older too!! Worst conversation you could ever have!! And we were all broken, but now there’s no more secret conversation and the kids are very open and ask questions!!we have said that never give up on hope, heartbreaking and I’m the same you have to keep going and fight for yours family xxx
2 posts since
31 Mar 2017
148 posts since
25 Mar 2017
Hello we have yet to tell our boys who are 9 and 8. They’re aware their dads been having scans and stuff and struggling with food sticking in his throat for 6 months but how do you now tell them it’s actually cancer
my heartbreaks for them although myself I feel strong and perhaps able to cope
10 posts since
29 Mar 2017
11 posts since
14 Nov 2018
I was diagnosed with Cholangiocarcinoma Aug 2017. Stage 4 inoperable. I have had 17 chemo therapy sessions. I am lucky, no pain and I am able to take the chemo with little discomfort. I would have had more chemo but it has been a little hit and miss the last 6 months due to low platelets. I am 69, children in 40’s so don’t have the issues that many have. Wondered how others are doing?
5 posts since
19 Dec 2018
5 posts since
19 Dec 2018
Please do tell what vitamins and where to get them.
11 posts since
14 Nov 2018
I feel you have to try. Just trying to prolong your life. I have found the chemo very bearable. I am taking 3 chemo drugs, about 4 hours every other week and take home pump for 46 hours. I guess you could say not real fun but not bad. I have just started having some stomach pain. Kind of like gas pressure but no gas. Good Luck God is good!!
2 posts since
15 Jan 2019
hi my partner was diagnosed last August and now they’ve said it’s spread to the liver and is stage 4. Can’t operate or give him chemo, said he’s maybe a month to live, did a lot of research on this cannabis oil so started him on it yesterday & omg what a difference in him, he’s eating drinking, getting dressed and coming downstairs, he’s hardly in any pain where as 2 days ago he was having injections of morphine for really bad pain. We are determained to prove the consultant wrong with his life expectancy and we are going to stick to the oil.
1 posts since
2 Feb 2019
Hi
my sister in law has this awful cancer and is currently having chemo but is really interested in the cannabis oil too. I hope your partner continues to do well
2308 posts since
11 May 2016
Welcome to the forum Lee although I’m sorry about your sister in law’s diagnosis.
I just wanted to make you aware of the latest UK rules and regulations about cannabis oil on the NHS website as well as this post one of our cancer nurses made in response to another member asking about this towards the end of last year.
Do make sure your sister in law discusses this with her medical team first as taking this could potentially interfere with the chemotherapy she is currently having, and can carry other side effects and risks as well.
Kind regards,
Steph, Cancer Chat Moderator
Terminal bile duct cancer
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