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1 posts since
23 Feb 2017
anyone else triple negative ?
3708 posts since
11 Oct 2010
Hello Riktik,
Welcome to Cancer Chat. I hope that some our members who have been diagnosed with triple negative breast cancer will see your message and come and share their story with you.
I did a little search for you and found that @Chasco posted recently and mentioned in her thread that she had been diagnosed with triple negative breast cancer and treated two years ago so she could be a good person for you to talk to.
Feel free also to join the conversation in @Annibee ‘s thread here. You will find other ladies there who also have triple negative breast cancer like @Sooty53 or @reticentfish .
Our information on triple negative breast cancer may also be of interest to you and you can read more about it here.
I hope you will get chatting soon with some of our other TNBC ladies.
Best wishes,
Lucie, Cancer Chat Moderator
40 posts since
2 Oct 2016
Hi Riktic,
yes me. I have just finished FEC-t and are due to start radiotherapy on Thursday.
It is scary, but do-able. The nursing staff are brilliant and you will be assigned your own team, who will help you with anything your not sure of.
I am here if you want to chat, you can message me, which is one to one, or just post on the forum and there is always someone willing to chat with you.
Best wishes to you
Doreen
27 posts since
3 Oct 2016
Re: Tnbc
Hi Riktic
I too had this diagnosis, initially had lumpectomy, sentinel lymph node biopsy and 15 sessions of Radiotherapy in 2014
sadly I was one with f the small percentage who get a recurrence so in July last year I had a mastectomy and as of last week I can say I completed 8 cycles of FEC-T chemotherapy.
Its a rocky road at times but you will have an amazing team caring for you and nothing is too much trouble, always someone to talk to and to give advice and support. I had my care in Coventry and I couldn’t have been given better treatment.
This forum is great for answering questions, making friends and getting useful information and support, you are not alone.
Good luck, you are strong and you can do this, it may be a roller coaster ride but you will be OK
Much love
Annibee
24 posts since
20 Nov 2019
Hi all.
Im 34, been diagnosed with tnbc on 28 of october.Start my treatment on Monday .it’s a very long journey but I’m looking forward
Wishing all the best to everyone on here
100 posts since
14 Nov 2019
Hi Nadiia
I too have recently been diagnosed with tnbc and i start my chemo in around 3 weeks time.
Hope yours goes well on Monday.
L x
24 posts since
20 Nov 2019
Hi.thank you for your replay .
I start on 25 November ,have every 21 day carbo and paclitaxel plus every week paclitaxel.its olredy 2 week and I’m have only a bit side effects only 2 days in bed need bit more rest as befo but try to be good mum and wife . Looking forward to finish all my treatment.we just need to remember life not finish and we need to enjoy ,some time it’s difficult but we need to ,so let’s plan still live longer.
I hope you start yours shortly too ,and you will be ok .
N x
246 posts since
3 Aug 2019
Hey Nadiia, Lindyluu
I thought i would say halloo as I am going through chemo treatment too and TNBC. All a bit scary but we’ll get there. There are a few of us ladies out there and we have a thread if you want to chat to any of us. Just been diagnosed BC Triple negative.
I found a lump in the summer and started my treatment on the 17th September. I’ve had 4 rounds of EC and now just started this week on paxo / carbo. Had it on Tuesday and outta bed yay! I’m also having the weekly paxo, incl christmas eve, hope its kind to me.
Hope you ladies are doing ok, feel free to chat any time.
Big hugs
Mich xx
100 posts since
14 Nov 2019
Hi Mich
I’m having my 1st Fec tomorrow morning, I’m nervous but also ready to start this journey.
How can I find the thread as it would be good to chat to others who are or have gone through it
L xx
246 posts since
3 Aug 2019
Hi L
Our thread is under ‘introduce yourself’ Just been diagnosed, BC – triple negative
good luck for tomorrow morning, will be thinking of you. I was also very nervous the first time, but the nurses and staff are so lovely and make you so comfortable. I have in my lymph nodes so my chemo slightly different to yours but i’m also having chemo first then opp then radiotherapy. So a long road but as the other girls have reminded me, just think about one step at a time otherwise it does get over whelming.
Have you got other support? I down loaded the BECCA app which is good for advice and stops me googling and scaring the s**** out of my self unnecesary. Excuse spelling, still have chemo brain lol!
Hugs for tomorrow xx
100 posts since
14 Nov 2019
Thank you Mich I found it and posted on there 
I have just downloaded the BECCA app too, I have stopped myself googling about triple negative because it is literally all negative lol.
I have a lovely supportive family and friends and are really positive like me but they cant know how i am feeling deep down as they aren’t going through it, well my mum actually does know as she had the same in feb! Shes just come through the other side and looks amazing and now i am going through it. They didnt do any genetic testing on her as no family history but they are going to test me now to see if i am BRCA +.
Linda xx
24 posts since
20 Nov 2019
Hi
Mich and Lindyluu.
Hope your journey ok.and you can cope with you chemo.Last week I been send home and they declined mi my chemo,because last week my woice gone and I went to hospital and they keep me 6days on antibiotics.Now I’m feel better my blad test was ok today and I get second corse of chemo .and on wensdey got appointment with my oncology.wish you all the best
Nadiia
Xxxx
246 posts since
3 Aug 2019
Hey Nadiia
Aww sorry to hear you have been poorly, glad the anti biotics sorted it out. How was your appointment today? My paclitaxel went ok yesterday and dare i say i feel almost normal today. Much better than mixed with carbo, no furniture walking for me lol! Lets hope i havne’t peaked too soon.
xx
24 posts since
20 Nov 2019
Hi Mich .
Thanks for your reply.my appointment went well.doctor happy with resolt after 1chemo my tumor shrink from 2.6 cm to 2cm .have CT scan in february.have carbo and paclitaxel Monday first 2days ok but yesterday and today very tired .when I have only paclitaxel feel normal too.how r you feeling,,?hope you well and you responded to chemo well to .talk to you later .kiss
Xx
246 posts since
3 Aug 2019
Hey Nadia
Ah that’s great news to hear! I know my mega tumour starting shrinking after the first dose which was a relief to hear as was over 5cm. My next ultrasound is on the 3 Jan, so not long now and can’t feel the tumour anymore.
Yeah still feel OK after paxo on Tuesday. I was worried there was maybe a delayed reaction but all good. Whew! Back on Xmas eve so let’s hope the same. My next carbo /taxol has been postponed to 8 jan so given me a 2 week break.
When is your next treatment?
Xx
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